049. An auction for DebRA!
Posted by motherfulkser on January 20, 2010
For those who don’t know, DebRA is the Dystrophic Epidermolysis Bullosa Research Association of America – an organization dedicated to finding a cure for EB, the skin disease from which precious baby Jonah suffers.
Junctional EB has a mortality rate of 87% in the first year of life – ladies and gentlemen, Jonah Williams will turn ONE YEAR OLD on February 27th, 2010!!! This little man has had a tough year, but has pulled through like a trooper, putting smiles on faces wherever he goes – I mean, look at this face…
…I’ll bet you $20 that you’re smiling now, too!
[photo edited by Emilee Mills]
In celebration of Jonah’s first birthday, his family and friends are sponsoring an auction, with 100% of the proceeds going to DebRA, to contribute to their work in finding a cure. Are you interested in supporting this GREAT cause? Here’s what you can do:
- Go to Jonah’s EB Auction blog for all the information you could possibly need.
- Do you have things you could donate to the auction? Email jonahsebauctionATgmailDOTcom to find out how you can donate.
- Are you in the Central Arkansas area and interested in donating money towards gift cards that will be donated to the auction? Leave me a comment on this post with your email (if I don’t already have it) and I’ll let you know how you can contribute.
- PARTICIPATE! The auction will run February 23 – February 27, leading up to Jonah’s first birthday. Check the blog linked above during that time to see what items are up for bidding!
What a GREAT chance to do our part to help find a cure!
